r/eds↗
Ehlers-Danlos Syndrome Open Discussion Forum
Ehlers Danlos Syndrome (EDS) is a underdiagnosed connective tissue disorder characterized by a genetic fault in collagen. It manifests as hypermobile joints and affects every organ system because we’re all made of connective tissue! We welcome all EDS subtypes, hypermobility spectrum disorder, Loeys Dietz, unnamed genetic disorders that present like EDS, self-diagnosed & suspected zebras. || || || Crowdsourced medical care saves lives. We welcome medical advice!
36k subscribers608 posts / mo in Sep 2026516 authors / mosince 2009
r/eds has 36k members (+54% over the last 12 months). It gets about 608 posts a month from 516 people. Top topics: Dog Limbs & Joints, Work Shoes and Hamstring Flexibility.
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How r/eds has grown
Subscriber growth
Subscribers over time
Monthly activity
Posts, comments and authors per month
Topics and brands on r/eds
Top topics
Share of the subreddit's posts
- Dog Limbs & Joints<0.1%
- Work Shoes<0.1%
- Hamstring Flexibility<0.1%
- Pole Dancing Injuries<0.1%
- Sleeping Positions<0.1%
Brands people mention
Most-mentioned brands and sites, last 12 months
- ScienceDirect
- TikTok
- Lippincott Williams & Wilkins
- Substack
- etsy
Everything else about r/eds
Posting rules and account requirements, how often posts get removed, who writes here (age, gender, countries), what people ask for, how they talk, and related subreddits — all in the full report.
Posts and activity for Sep 2026. Members from Reddit's subscriber counts. Read from the same data the app runs on. Our research