r/ehlersdanlos↗
Ehlers-Danlos Syndrome
This is a support sub for those with Ehlers-Danlos syndrome (all types) and HSD—diagnosed or waiting to be diagnosed. This is a welcoming place for those affected (or those simply wanting to learn more) to ask questions, share successes and failures, feel less alone, and discuss everyday life. Before participating, please read our rules. This subreddit does not allow medical advice. Thank you!
125k subscribers975 posts / mo in Sep 2026 (incl. ~1% by known bots)804 authors / mosince 2011
r/ehlersdanlos has 125k members (+29% over the last 12 months). It gets about 975 posts a month from 804 people. Top topics: Pole Dancing Injuries, Disabilities in Higher Education and Flexibility Routine.
When to post on r/ehlersdanlos
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How r/ehlersdanlos has grown
Subscriber growth
Subscribers over time
Monthly activity
Posts, comments and authors per month
Topics and brands on r/ehlersdanlos
Top topics
Share of the subreddit's posts
- Pole Dancing Injuries<0.1%
- Disabilities in Higher Education<0.1%
- Flexibility Routine<0.1%
- Hand Pain & Comfort<0.1%
- Hand Pain & Ergonomics<0.1%
Brands people mention
Most-mentioned brands and sites, last 12 months
- MDPI
- North Central Cancer Treatment Group
- Doi
- Crisis Text Line
- OpenCounseling
Everything else about r/ehlersdanlos
Posting rules and account requirements, how often posts get removed, who writes here (age, gender, countries), what people ask for, how they talk, and related subreddits — all in the full report.
Posts and activity for Sep 2026. Members from Reddit's subscriber counts. Read from the same data the app runs on. Our research