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r/iih↗

Intracranial Hypertension: A community for knowledge and support

Welcome to our supportive community for anyone affected by Idiopathic Intracranial Hypertension (IIH)—a rare neurological condition that causes increased pressure inside the skull. Whether you're newly experiencing symptoms, in the process of being diagnosed, living with IIH, or supporting a loved one, you're welcome here. This is a place to ask questions, share experiences, celebrate victories, vent on the difficult days, and connect with others who understand what you're going through.

21k subscribers432 posts / mo in Sep 2026323 authors / mosince 2013

r/iih has 21k members (+32% over the last 12 months). It gets about 432 posts a month from 323 people. Top topics: Cream Soda & Citrus Varieties.

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Free report

When to post on r/iih

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Visitors without an account can open 3 subreddit reports a day. The best time to post on r/iih, removal risk and the rest of the report are one step away.

Size and growth

How r/iih has grown

r/iih

Subscriber growth

Subscribers over time

+32%in 12 months · +5.8% in 3 months · +1.5% in 1 month
Oct 202621k
Growing21k subscribers
Data since Mar 2018Live · through Oct 2026
r/iih

Monthly activity

Posts, comments and authors per month

−0.5%vs Sep 2025 · −7.0% last 3 months vs the 3 before
Sep 2026432
QuieterPeaked at 661 in Mar 2025
Data through Sep 2026 · October usually lands mid-November

What people talk about

Topics and brands on r/iih

Top topics

Share of the subreddit's posts

  1. Cream Soda & Citrus Varieties<0.1%

Brands people mention

Most-mentioned brands and sites, last 12 months

Can you post

Posting rules for r/iih

Which post types r/iih allows, the karma and account age it asks for, required flair, and every community rule — read from Reddit.

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Timing and removals

How often posts get removed on r/iih

The best day and hour for r/iih, how many posts moderators remove and which kinds, the shape of its year, and weekdays against weekends.

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What to post

What works on r/iih

Title and body length that does well on r/iih, and its mix of text posts, links, images, galleries and video.

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Who writes here

Who posts on r/iih

Gender and age of the people who write on r/iih, the countries and US states they live in, their jobs, and whether a few regulars carry the conversation.

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How they talk

What people ask for on r/iih

Requests for recommendations, help and alternatives on r/iih, its signature words and phrases, the brands and sites people link with counts, and the tone of the comments.

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The full report

See all of r/iih

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Posts and activity for Sep 2026. Members from Reddit's subscriber counts. Read from the same data the app runs on. Our research